Tag Archives: ALS

Ice Bucket Challenge co-creator Patrick Quinn dies at age 37

NEW YORK (Reuters) – Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, died on Sunday at age 37, seven years after his diagnosis, supporters announced on Facebook.

Quinn, who was born and grew up in Yonkers, New York, was co-founder of the campaign that raised more than $220 million for medical research into amyotrophic lateral sclerosis, more commonly known as Lou Gehrig’s Disease, his Facebook page said.

He was diagnosed with ALS on March 8, 2013, according to his Facebook page.

“It is with great sadness that we must share the passing of Patrick early this morning,” his supporters said on Facebook. “We will always remember him for his inspiration and courage in his tireless fight against ALS.”

Condolences to the Quinn family poured in on social media, with many expressing gratitude for the spotlight he drew to the disease and the need to find a cure.

The Ice Bucket Challenge went viral on social media in the summer of 2014, when people around the world posted videos and photos of themselves dumping buckets of ice water on their heads and challenging others to do the same while urging donations for ALS research.

Roughly 12,000 to 15,000 Americans may have ALS, according to the U.S. Centers for Disease Control and Prevention. An estimated 5% to 10% of ALS cases are believed to be hereditary, but the cause is unknown and there is no cure.

Among Quinn’s many honors for raising awareness of ALS and promoting research was a nomination with fellow ALS activist Peter Frates as “Person of the Year” by Time magazine. Frates died last year at age 34, seven years after his diagnosis.

(Reporting by Barbara Goldberg; Editing by Lisa Shumaker)

Pro-Life Leaders Say “Ice Bucket Challenge” Hides Secret

Pro-life leaders are raising the alarm regarding the “Ice Bucket Challenge” that has raised millions of dollars for the ALS Association.

The ALS Association supports destruction of human embryos so they can be used in research.

“It is noble to combat a deadly disease, and the ice bucket challenge definitely puts a fun spin on philanthropic efforts. That’s why it’s such a shame that the ALS Association, while striving to save some people, chooses to support research that thrives from experimenting on and killing tiny, innocent human beings,” Lila Rose, president of the pro-life advocacy group Live Action, said in a statement.

“Embryonic stem cell research, which requires the destruction of pre-born people, is inherently unethical and a violation of fundamental human rights, and even materialists must admit that promises of its benefits have failed to deliver. There is no good reason to condone this practice; in fact, all it does is taint the ALS Association, whom I’d otherwise be happy to support.”

The Catholic Church has also come out against the challenge on the sole basis that the ALS Association endorses embryonic stem cell research.

Father Michael Duffy suggests that as an alternative, Christians give to the John Paul II Medical Research Institute because they do research without using embryonic stem cells.